Effects of a neuropsychosocial teleassistance intervention on social cognition and health-related quality of life of pediatric patients with neuromuscular diseases

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dc.contributor.authorGarcía Urquiza, Irune
dc.contributor.authorMartínez, Óscar
dc.contributor.authorAmayra Caro, Imanol
dc.contributor.authorSalgueiro, Monika
dc.contributor.authorRodríguez Bermejo, Alicia Aurora
dc.contributor.authorLópez Paz, Juan Francisco
dc.date.accessioned2024-11-19T15:33:46Z
dc.date.available2024-11-19T15:33:46Z
dc.date.issued2024-08
dc.date.updated2024-11-19T15:33:46Z
dc.description.abstractObjective: This study aimed to determine the effects of a neuropsychosocial teleassistance group-based intervention on improving social cognitive functioning and health-related quality of life (HRQoL) in pediatric neuromuscular diseases (NMD). Methods: Thirty-five pediatric patients with NMD were assigned to the neuropsychosocial intervention program (n=20) or waiting list control condition (n=15). The intervention group received an integrative approach that combines training in social cognition with cognitive behavioral therapy. All participants completed a neuropsychological and clinical assessment at baseline and follow-up, which included tests of social cognition, both for emotion recognition and theory of mind, and HRQoL. Repeated-measures multivariate analysis of covariance was used to determine the effects of the teleassistance program. Results: Group × Time interactions revealed significant improvements in the intervention group as compared with the control group for different social cognition's indicators (AR NEPSY-II: p=.003, η2p = .24; TM NEPSY: p<.001, η2p = .35; Verbal task: p<.001, η2p = .35; Happe's Strange Stories: p=.049, η2p = .11) and HRQoL (Psychosocial health: p=.012, η2p = .18; Emotional functioning: p=.037, η2p = 0.13; Social functioning: p=.006, η2p = .21; Total: p=.013, η2p = .17), showing medium to large effects. Conclusions: Patients receiving the neuropsychosocial intervention showed improvements in their social cognition performance and psychosocial HRQoL, providing evidence about the positive effects of the program in pediatric patients with NMD. This should be considered in further research and interventions in this field.en
dc.description.sponsorshipThis work was supported by a grant from the Deusto International Research School (DIRS) ‘Programa de Ayudas para Formación de Personal Investigador de la Universidad de Deusto’ [FPI UD_2021_04 to I.G.]en
dc.identifier.citationGarcía, I., Martínez, O., Amayra, I., Salgueiro, M., Rodríguez, A. A., & López-Paz, J. F. (2024). Effects of a neuropsychosocial teleassistance intervention on social cognition and health-related quality of life of pediatric patients with neuromuscular diseases. Journal of Pediatric Psychology, 49(8), 525-535. https://doi.org/10.1093/JPEPSY/JSAE013
dc.identifier.doi10.1093/JPEPSY/JSAE013
dc.identifier.eissn1465-735X
dc.identifier.urihttp://hdl.handle.net/20.500.14454/1984
dc.language.isoeng
dc.publisherOxford University Press
dc.rights© The Author(s) 2024
dc.subject.otherCBT
dc.subject.otherHRQoL
dc.subject.otherNeuropsychosocial intervention
dc.subject.otherPediatric NMD
dc.subject.otherSocial cognition
dc.subject.otherTeleassistance
dc.titleEffects of a neuropsychosocial teleassistance intervention on social cognition and health-related quality of life of pediatric patients with neuromuscular diseasesen
dc.typejournal article
dcterms.accessRightsmetadata only access
oaire.citation.endPage535
oaire.citation.issue8
oaire.citation.startPage525
oaire.citation.titleJournal of Pediatric Psychology
oaire.citation.volume49
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